It is common and badly missed. For decades it was found only in uteruses removed for other reasons, so it looked like a rare condition of older women. Better ultrasound changed that: scanning unselected clinic patients turns it up in about one in five 1. Roughly a third have no symptoms; the rest range from heavier periods to barely functional one week a month 2.
The bleeding drains you slowly. Cycle after cycle of heavy loss strips iron faster than food replaces it, and iron-deficiency anaemia is markedly more common here than in matched controls β it pulls down energy and exercise tolerance with it 2.
A scan is the way in. A transvaginal ultrasound from someone who knows the features catches about three in four cases, with few false alarms 3. A generic pelvic scan hunting for fibroids often misses it.
The move is to get it named, then treated β not to endure it. Most clinicians won't look unless you make them, so walk in with the ask ready.
What treatment buys back. A levonorgestrel IUD cuts menstrual bleeding by 70 to 90 percent and eases cramping within a few cycles 42; if it doesn't suit, daily dienogest brings pain scores down about six points on a ten-point scale 5.
- First month: the overnight-pad drawer stops being daily-use, and the painkiller bottle stays on the shelf.
- Months three to six: iron recovers, the 3 pm crash fades, and you get through a workday in the heavy week.
- Year one: you stop scheduling your life around your period, because you no longer need to.
The fine print β when to skip it, and what people get wrong
It only hits women in their forties who've had kids. Older data said so because they only examined removed uteruses; ultrasound finds it in nulliparous women in their twenties 6. Hysterectomy is the only real fix is also false β the IUD and dienogest handle most cases without removing anything 4. It is the same as endometriosis: related and often coexisting, but a different disease inside the muscle rather than outside the uterus.
Quitting the IUD too early is the common one: irregular spotting is the rule for the first 8 to 12 weeks, then it settles into much lighter periods or none. Skipping the iron workup is another: ferritin drops long before haemoglobin does, so a normal haemoglobin without ferritin checked is incomplete.
- 1Naftalin J, Hoo W, Pateman K, Mavrelos D, Holland T, Jurkovic D (2012). How common is adenomyosis? A prospective study of prevalence using transvaginal ultrasound in a gynaecology clinic. Human Reproduction. link
- 2Loring M, Chen TY, Isaacson KB (2022). Adenomyosis: Diagnosis and Management. American Family Physician. link
- 3Champaneria R, Abedin P, Daniels J, Balogun M, Khan KS (2010). Ultrasound scan and magnetic resonance imaging for the diagnosis of adenomyosis: systematic review comparing test accuracy. Acta Obstetricia et Gynecologica Scandinavica. link
- 4Singh SS, Belland L, Leyland N, Murji A, Bougie O (2023). Guideline No. 437: Diagnosis and Management of Adenomyosis. Journal of Obstetrics and Gynaecology Canada. link
- 5Etrusco A, LaganΓ AS, Chiantera V, Buzzaccarini G, Unfer V (2024). Dienogest treatment of symptomatic adenomyosis: An in-depth meta-analysis. European Journal of Obstetrics and Gynecology and Reproductive Biology. link
- 6Bourdon M, Santulli P, Marcellin L, Maignien C, Maitrot-Mantelet L, Bordonne C, Millischer AE, Plu Bureau G, Chapron C (2021). Adenomyosis: An update regarding its diagnosis and clinical features. Journal of Gynecology Obstetrics and Human Reproduction. link
Related in the handbook (5)
- β A hormonal IUD cuts the bleeding 70-90% and dulls the pain β usually the first thing to try.
- β Logging how heavy and how painful your periods really are gives the gynaecologist the pattern that points at adenomyosis.
- β Adenomyosis is the close cousin β same painful, heavy periods, often coexisting; an ultrasound starts telling them apart.
- β Adenomyosis is a frequent, under-diagnosed cause of heavy, painful periods β ask for the ultrasound.
- β Adenomyosis causes the same heavy painful periods and often coexists; the ultrasound distinguishes them.